May we take this opportunity to wish families and professionals in the UK and every country around the world, a safe and peaceful New Year 2017.
“Mitochondrial Disease is a worldwide group of disorders, together we are better, together we can fight better as one”.
#TheChildrensMitochondrialDiseaseNetwork
#TheBigM
#MitochondrailDiseaseAwareness
#PaediatricPalliativeCare
Mitochondrial disease – new research
Prof Doug Turnball and Paul Preston at the HFEA Mitochondrial Overview Meeting and UK Law Change 2015
http://www.hfea.gov.uk/mitochondrial-disease-new-research.html
Mum’s united together
Mum’s Rachel Preston (Stacey, Kristen & Kieran’s Mummy) & Lisa Slaney (Corah’s Mum) united together – #AChorus4Corah & The Children’s Mitochondrial Disease Network
“Providing Information, Support & Understanding for all known Mitochondrial Disorders”
A Chorus 4 Corah
A selection of the 100’s of photo’s taken on Saturday the 17th September, Festival Hall, Kirkby in Ashfield, Nottingham, featuring, Carl and Lisa Slaney, Hosts and Compares, Katie Trinder DJ – Mansfield 103.3FM and Lee Roberts – Haunted Events UK, on stage at the fundraiser #AChorus4Chorah, #RaiseTheRoof4Corah.
Introducing our new patrons
On behalf of The Children’s Mitochondrial Disease Network & TeamCorah, may I take this opportunity to introduce you to our new Charity Patrons; Lee Roberts – Haunted Events UK & Katie Trinder – DJ & Presenter Mansfield 103.2FM.
We are absolutely delighted to have both Lee & Katie on board
Why Another Charity
Founded by Paul Preston after his daughter died aged only 8 weeks on the 18th November 1992 at the Royal Manchester Children’s Hospital. Kristen Lesley Preston, the 3rd child of Paul & Rachel Preston, Kristen presented with poor feeding and floppiness from birth, while she was considered a quite baby.
Big Big Thank You
Big Big Thank You To “Mandy Shepherd Gandy” who raised a staggering £560.00 for The Children’s Mitochondrial Disease Network, while boxing at a charity boxing event in July in memory of her precious daughter Mandy, who lost her precious life to Mitochondrial Disease, thank you so much our dear friends
In Memory of Ellie
Nicola & Craig’s Parachute Jump for Mitochondrial Disease in Memory of “Ellie”
Sarah Case from Maury France
Ran and completed the Paris Marathon in April 2008 for CMDN, well done & thank you! A very respectable time was also acheived, thank you so much Sarah.